Thursday, January 24, 2008
Get Well Austin
Today I went to visit my good friend and next door neighbor Christina's youngest boy - Austin - at the hospital on my lunch break.
Austin was taken to the ER early Wednesday morning with terrible congestion, a horrible cough and just all around having a hard time breathing. Trying to get his oxygen level up to a "normal" level is tougher on him. You see, Austin has CDG. I've written about him here. When Austin was around 6 months old, he was taken to our local children's hospital and diagnosed with CDG - Congenital Disorders of Glycosylation. It is a very rare disorder (maybe only 200 cases ever) and most children with this disorder are not even diagnosed properly. Austin has been doing amazing for all he has to go through, and this has literally been his first hospitalization since his diagnosis - and he is now almost 3 years old. Austin's two older brothers are Perry's closest friends and we treat them all as family.
One of my life changes for this year was to listen to God's voice (sometimes also just my gut feeling), to engage in small changes in my life, and to also remember that this life is not about me.
Going to see Christina and Austin today, bringing her lunch from her favorite deli that is just around the corner from my work, and giving her a hug of encouragement and friendship brightened my day. It isn't all about me - and I like it that way.
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Overheard at dinner last night ~
Me - "Do you have to be out of town the second week of February?"
Phil - "I'm out of town here and here, and back in town for Friday and I'm mystery reader that day in Perry's class."
Me - "Umm - hello - you don't have to mention this out loud - hence the word 'mystery'."
Phil - "Oh yeah - Um Perry - don't tell anybody in your class."
Austin was taken to the ER early Wednesday morning with terrible congestion, a horrible cough and just all around having a hard time breathing. Trying to get his oxygen level up to a "normal" level is tougher on him. You see, Austin has CDG. I've written about him here. When Austin was around 6 months old, he was taken to our local children's hospital and diagnosed with CDG - Congenital Disorders of Glycosylation. It is a very rare disorder (maybe only 200 cases ever) and most children with this disorder are not even diagnosed properly. Austin has been doing amazing for all he has to go through, and this has literally been his first hospitalization since his diagnosis - and he is now almost 3 years old. Austin's two older brothers are Perry's closest friends and we treat them all as family.
One of my life changes for this year was to listen to God's voice (sometimes also just my gut feeling), to engage in small changes in my life, and to also remember that this life is not about me.
Going to see Christina and Austin today, bringing her lunch from her favorite deli that is just around the corner from my work, and giving her a hug of encouragement and friendship brightened my day. It isn't all about me - and I like it that way.
******************************************************************
Overheard at dinner last night ~
Me - "Do you have to be out of town the second week of February?"
Phil - "I'm out of town here and here, and back in town for Friday and I'm mystery reader that day in Perry's class."
Me - "Umm - hello - you don't have to mention this out loud - hence the word 'mystery'."
Phil - "Oh yeah - Um Perry - don't tell anybody in your class."
Labels: friends; gratitude
3 Comments:
Hey!! I've missed seeing you on here. I think it's wonderful that you were able to go visit this family. I'll bet it was a blessing to them.
Hugs,
Susan
Oh, poor Austin. I hope he's feeling better soon. I can't believe he's almost 3 already!
And I got a good giggle out of Phil's slip-up. That sounds like a conversation that might take place at our house!
Too funny about the mystery reader.
I am so bad about following through on those impulses, so I applaud you for that!
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